Neuroethics Resources

Interview Series: Conversations in Ethics Neurodevelopmental Disorders

Publications

 

Conversations in Ethics and Neurodevelopmental Disorders

This series was created to publicize and share just a few of the fascinating ethical issues that face Developmental Neuroscience today. Members of the Kids Brain Health Network/Neuroethics Core Research teams interview experts in their fields about the issues that they think are worth talking about.

There is a short video, a full length podcast for each interview and a reference list for further reading!

Give us your feedback on these videos in our survey here: https://www.surveymonkey.com/s/6GXR3VW

We hope these pique your curiosity and we want to hear your comments and ideas, whether you are a researcher, a person affected by these issues, or a curious member of the public. Comments, and suggestions for topics are welcome on the NeuroEthics Blog, Facebook, and Twitter page.

References are available here.

 

Talking about Alternative Therapies for Cerebral Palsy

Talking about Alternative Therapies for Cerebral Palsy Meet Dr. Adam Kirton, a Pediatric Neurologist at Alberta Children’s Hospital and University of Calgary and Dr. Darcy Fehlings, a Developmental Pediatrician at the University of Toronto and Bloorview Kids Rehab. Here, in a conversation with Dr. Judy Illes, they discuss alternative therapies for cerebral palsy, the need for collaboration between families and doctors and evidence based medicine.

Adam Kirton-CP and Alternative Therapies by Neuroethics Core

 

Darcy Fehlings- CP And Health Information by Neuroethics Core

 

 Talking about Stem Cells and Cerebral Palsy

Meet Dr. Michael Fehlings, a Neurosurgeon, Scientist and Professor at the University of Toronto. Here, in a discussion with Dr. Judy Illes, he discusses the potential for stem cells in the treatment of cerebral palsy and the associated ethical issues.

Michael Fehlings- Stem Cells And CP by Neuroethics Core

 

Talking about Prenatal Screening for Fetal Alcohol Syndrome Disorders

Meet Dr. James Reynolds, a Professor and Researcher at Queens University. Here, in a discussion with Dr. Emily Bell, he discusses the potential for using biomarkers to screen for Fetal Alcohol Syndrome Disorder, the associated risks and benefits of this and ethical issues.

James Reynolds- FASD And Prenatal Screening by Neuroethics Core

Talking about Cerebral Palsy, Adolescence, and Transitions

Meet Dr. Eric Racine, Director of the Neuroethics Research Unit, Institut de recherches cliniques de Montreal. Here, in a conversation with Dr. Nina di Pietro, he discusses ethical issues for adolescents living with cerebral palsy, and their transition to adult services.

Dr. Eric Racine - CP, Adolescence, and Transitions by Neuroethics Core

Publications

For each of the following publications by the Kids Brain Health Network Neuroethics Core, links to the abstract (where available) as well as to an article summary are included:

  • In the Know and In the News: How Science and the Media Inform the Public About Stem Cells for Autism and Cerebral Palsy

Sharpe, K., Di Pietro, N., Mc Glanaghy, E., and Illes, J. Stem Cell Rev. 12(1): 1-7 (2016)

Abstract

  • Young Persons in Research: A Call for the Engagement of Youth in Mental Health Research

Bell, E. American Journal of Bioethics 15(11): 28-30 (2015).

Abstract

  • The Use and Overuse of Antipsychotics in Children and Youth.

Di Pietro, N. C., Illes, J. (2015)

Book

  • Caution! Warning Labels About Alcohol and Pregnancy: Unintended Consequences and Questionable Effectiveness.

Bell, E., Zizzo, N., and Racine, E. American Journal of Bioethics 15(3): 18-20 (2015)

Abstract

  • It's a Shame! Stigma Against Fetal Alcohol Spectrum Disorder: Examining the Ethical Implications for Public Health Practices and Policies.

Bell, E., Andrew, G., Chudley, A., Di Pietro, N., Reynolds, J., and Racine, E. Public Health Ethics (online): 1-13 (2015).

Abstract

  • Public Discourse on the Biology of Alcohol Addiction: Implications for Stigma, Self-control, Essentialism, and Coercive Policies in Pregnancy.

Racine, E., Bell, E., Zizzo, N., and Green, C. Neuroethics 6(2): 177-186 (2015).

Abstract

  • Magnetic Resonance Imaging (MRI) and Prognostication in Neonatal Hypoxic Ischemic Injury: A Vignette-based Study of Canadian Specialty Physicians.

Bell, E., Rasmussen, L. A., Mazer, B., Shevell, M., Miller, S. P., Synnes, A., Yager, J. Y., Mainemar, A., Muhajarine, N., Chouinard, I., and Racine, E. Journal of Child Neurology 30(2): 174-181 (2015).

Abstract

  • Returning Genetic Research Results in Neurodevelopmental Disorders: Report and Review

Bell, E., Racine, E., Carter, M., Di Pietro, N., Illes, J., and Zwaigenbaum, L. (2015)

Abstract

  • Ethical Challenges of Transition from Pediatric to Adult Health Services for Young Adults with Neurodevelopmental Disabilities.

Racine, E., Bell, E., Yan, A., Andrew, G., Bell, L., Clarke, M., Dubljevic, V., Goldowitz, D., Janvier, A., McLachlan, K., Muhajarine, N., Nicholas, D., Oskoui, M., Rasmussen, C., Rasmussen, L. A., Roberts, W., Shevell, M., Wade, L., and Yager, J. Y. Paediatrics and Child Health 19(2): 65-68 (2014).

Abstract

  • Ethical and Social Challenges in Newborn Screening for Prenatal Alcohol Exposure: A Discussion from an Interdisciplinary Panel.

Yan, A., Bell, E., and Racine, E. Canadian Journal of Neurological Sciences 41(1): 115-118 (2014).

Abstract

  • Rising Antipsychotic Drug Prescriptions for Canadian Children and Youth: Political Problems?

Di Pietro, N., illes, J., and the Canadian Working Group on Antipsychotic Medications and Children. Canadian Medical Association Journal 186(9): 653-654 (2014)

Article

  • Perspectives of Young Adults with CP on Transitioning from Pediatric to Adult Healthcare Systems.

Larivière-Bastien, D., Bell, E., Majnemer, A., Shevell, M., and Racine, E. Seminars in Pediatric Neurology 20(2): 154-159 (2013).

Abstract

  • Comments and Reflections on Ethics in Screening for Biomarkers of Prenatal Alcohol Exposure.

Zizzo, N., Di Pietro, N., Green, C., Reynolds, J., Bell, E., and Racine, E. Alcoholism: Clinical and Experimental Research 37(9): 1451-1455 (2013).

Abstract

  • Respect for Autonomy in the Healthcare Context: Observations from a Qualitative Study of Young Adults with Cerebral Palsy.

Racine, E., Larivière-Bastien, D., Bell, E., Majnemer, A., and Shevell, M. Child: Care, Health and Development 39(6): 873-879 (2013).

Abstract

  • Proven or unproven? Panel report on ethics in the translation of neuroscience.

Racine, E., Wallace, T., Wade, L., Bell, E., and Chouinard, I. Canadian Journal of Neurological Sciences 39(2): 247-250 (2012).

Abstract

  • Perspectives of adolescents and young adolescents with cerebral palsy on the ethical and social challenges encountered in health care services.

Larivière-Bastien, D., Majnemer, A., Shevell, M., and Racine, E. Narrative Inquiry on Bioethics: A Journal of Qualitative Research 1(1): 43-54 (2012).

Abstract

  • Ethical Perspectives in Cooling for Term Infants with Intrapartum Asphyxia.

Shevell, Michael I. Developmental Medicine & Child Neurology 54(3): 197-199 (2012).

Abstract

Article Summary

  • Ethical Conduct for Research Involving Humans: Review of Tri-Council Policy Statement Changes.
  • Di Pietro, N. (2011).

Article

  • Does the Neuroscience Research on Early Stress Justify Responsive Childcare? Examining Interwoven Epistemological and Ethical Challenges.

Maxwell, B. and Racine, E. Neuroethics Apr 16: 1-14 (2011).

Abstract

Article Summary

  • Treatments and Services for Neurodevelopmental Disorders on Advocacy Websites: Information or Evaluation?

Di Pietro, N.C., Whiteley, L. and Illes, J. Neuroethics Feb 24: 1-13 (2011).

Abstract

Article Summary

  • Evidence-based Neuroethics for Neurodevelopmental Disorders.

Racine, E., Bell, E., Di Pietro N.C., Wade, L. and Illes, J. Seminars in Pediatric Neurology 18: 21-25 (2011).

Abstract

Article Summary

  • Responding to Requests of Families for Unproven Interventions in NeuroDevelopmental Disorders: Hyperbaric Oxygen "Treatment" and Stem Cell "Therapy" in Cerebral Palsy.

Bell, E., Wallace, T., Chouinard I., Shevell, M., and Racine, E. Developmental Disabilities Research Reviews 17(1): 19-26 (2011).

Abstract

Article Summary

  •  A Brief Synopsis of the "Why, What and How" of Teaching Ethics to Pediatric Neurology Trainees.

Shevell, Michael I. Seminars in Pediatric Neurology 18(2): 79-80 (2011).

Article Summary

  • Evidence-based Neuroethics for Neurodevelopmental Disorders.

Racine E, Bell E, Di Pietro N, Wade L, Illes J. Seminars in Pediatric Neurology 18:21-25 (2011).

Abstract

Article Summary

  • Ethics in Health Care Services for Young Persons with Neurodevelopmental Disabilities: A Focus on Cerebral Palsy.

Lariviere-Bastien D, Racine E. Journal of Child Neurology 26(10): 1221-1229 (2011).

Abstract

Article Summary

  • Ethics in Neonatal Neurology: When is Enough, Enough?

Racine E, Shevell MI. Pediatric Neurology 40(3): 147-155 (2009).

Abstract

Article Summary