Researchers’ drive towards cracking the genetic code for autism is the subject of a new documentary produced by CBC’s the National. A program that premiered October 25 featured the $50 million MSSNG project, headed by NeuroDevNet Autism Research co-lead Dr. Stephen Scherer. The largest genomic study in the world, MSSNG's goal is to provide answers surrounding the causes and diversity of symptoms in autism.
On the eve of World CP Day 2106, NeuroDevNet and the Network's cerebral palsy researchers convened the sixth annual CP in Motion conference in Calgary.
This highly experiential October 1 gathering, including keynotes, community consultation and visits to labs and clinical facilities at the University of Alberta Children's Hospital, drew a diverse audience of health professionals parents and people with CP. A highlight of the event was the tour of labs and clinical settings featuring NeuroDevNet and other studies currently underway within the Calgary-based hospital and its research institute.
The Hon. Carla Qualtrough, Minister of Sport and Persons with Disabilities announced a new initiative aimed at ensuring greater accessibility and opportunities for Canadians with disabilities in their communities and workplaces Sept. 22 in Gatineau Quebec.
The minister invited national not-for-profit organizations with a focus on disability to apply for funding through the 2016 Social Development Partnership Program – Disability Component (SDPP-D) call for proposals. Under a competitive process, eligible national disability organizations may submit funding proposals over a six week period until November 3, 2016 for "innovative projects that identify, develop and test promising practices and tools that promote the social inclusion of people with disabilities. The practices and tools may be new or build on existing programs and services."
Lack of protection is leading Canadian families and individuals to avoid genetic testing, even when results might provide valuable insight into a diagnosis and help target treatment.
Citing cases where people have faced discrimination in employment, adoption and obtaining insurance based on genetic testing, three University of Toronto professors, including Autism Research Group co-lead Dr. Stephen Scherer, penned an op-ed in the Globe and Mail September 19, saying Canada needs to catch up with other Western countries, and enshrine genetic fairness in the law.