News & Publications

Life with a neurodisability goes beyond the brain

June 16, 2017

Emily Travis was 16 when she began to faint regularly.

Diagnosed with Fetal Alcohol Spectrum Disorder as a 12 lb., year-old infant, her health trajectory had been atypical from the start. But when Travis told her doctor she suspected the fainting was linked to her FASD, she was met with a dismissive response.

Ontario FASD funding announcement generates hope and concern

May 16, 2017

An announcement from the Ontario government earlier this month committing $26 million in the province’s budget to support youth and families affected by fetal alcohol spectrum disorder (FASD) is being met with a mixed response.

The strategy lists six initiatives, which include providing one-stop access to information, funding for 56 FASD workers and parent support networks, increasing access to FASD initiatives developed by Indigenous partners, establishing consultation groups, and creating a research fund.

Every adult of today was a child first. But do children have a voice in matters that are important for them?

April 21, 2017

Do children with disabilities and their families know they have rights? Does Canada respect their rights? In Giving a Voice to Children’s Rights, a blog posting on March 31, 2017, Dr. Keiko Shikako Thomas laid out these intersecting issues arising in childhood disability and human rights in a Canadian context.

A few days later, Shikako-Thomas, co-lead of the Network's KT Core policy engagement project and other members of a Canadian delegation of civil society organizations (CSOs) appeared before the United Nations committee overseeing the Convention on the Rights of Persons with Disabilities. Dr. Shikako-Thomas presented on the status of children with disabilities and responded to detailed questions as part of a compliance review in Geneva April 2-4. Canada became a 2010 signatory to the convention, and both the federal government and relevant NGOs participated in the review process.

Social ABCs program can be transformative for non-verbal toddlers with autism or yet-to-be diagnosed

March 30, 2017

Alexandra Foster sits alongside her son blowing bubbles, watching them drift across his bedroom. “Bubble!” enthuses three-year-old Hayden, making the sound of an ‘L’ for the first time in his life.

“Just hearing him say that word was such a happy moment for me,” says Foster. Last year, Hayden was diagnosed with autism. Up until then, he had been effectively non-verbal, meaning the few words he could say, Hayden used out of context.