Nouvelles & publications

Parents spend out of pocket for access to treatments while evidence base and funding lag

Octobre 30, 2017

Since being diagnosed with cerebral palsy (CP) at 10 weeks of age, treatment has been a constant in Owen Crumpler’s life. His mother, Karena Crumpler, tried many early interventions including occupational therapy, speech therapy, and acupuncture.

By the time Owen turned three, Karena and her husband felt he hadn’t made as much progress as they’d hoped, so they decided to travel to the U.S. to seek out a trademarked approach that wasn’t then available in their home province of British Columbia.

World CP Day: Cerebral Palsy Canada Network accelerating through collaboration

Octobre 6, 2017

CP Canada Network is working towards a life without limits for people with cerebral palsy (CP) every day, promoting awareness, accessibility, and effective programs and services across the country.

CP is the most common physical disability in children, affecting more than 50,000 Canadians. Early diagnosis and treatment of CP, as well as support for families has priority for Kids Brain Health Network from the very beginning. Dr. Darcy Fehlings, lead of the Network’s CP research group based at Holland Bloorview Kids Rehabilitation Centre in Toronto has been a consistent champion for connecting the research community with community organizations that actively serve and engage children with CP and their caregivers. 

Genetic research sheds new light on Cerebral Palsy

Octobre 6, 2017

When Donna Cappelli’s son was born 10 weeks premature, the doctors told her not to worry—it would just take him a bit longer to reach developmental milestones. 

But as time passed, it became clear to Donna that this wasn’t the case. Milestone dates were passing by, and Julian couldn’t yet hold his head up, grasp for things, or hear well. By the time he was one year old he was diagnosed with cerebral palsy (CP).

Booze and Bumps cultivates FASD awareness with wit and utmost seriousness

Septembre 8, 2017

Amy Lockwood was nearly two months pregnant when her neighbourhood had a block party. Every half hour, families would migrate from one house to the next, where a different appetizer and alcoholic beverage were served.

At each house, Amy declined a drink, reminding her neighbours that she was pregnant. She has strong personal connections with Fetal Alcohol Spectrum Disorder (FASD), and knew the dangers of drinking while pregnant. But every time, she was met with a response that shocked her.